bad days prove that God is good
“May your struggles keep you near the cross
And may your troubles show that you need God
And may your battles end the way they should
And may your bad days prove that God is good
And may your whole life prove that God is good”
Song of the Day: “God is Good” by Jonathan McReynolds
I still can’t get over the fact that we spent four weeks in the hospital. We spent a whole month, which feels like one gigantic day, in the hospital, unattached and unproductive, yet spiritually productive because the time spent in the hospital brought us closer to God.
I can’t believe December is only a few short wintery days away. We just celebrated Thanksgiving, and I am so grateful to be home. Last week was a holiday, so this is our first week of getting back into our routine with the big girls and school.
While we have many doctor visits and at-home visits scheduled and will be no strangers to the hospital - her testimony proves that God is still good even on the bad days.
We have John Hopkins Home Care Nurse - so nurses and doctors do home visits.
Sevyn is doing great. She’s smiling and laughing. She’s happy, most of the time. She’s meeting her feeding goals and gaining weight. She’s no longer on the feeding tube (she pulled it out the first night we came home). We are currently working on strengthening her arms because she couldn’t use them for several weeks.
Monday, November 28 - First outpatient visit to the hospital. She had to get blood drawn, and we also spoke with the hand surgeon.
Morning coffee with daddy:
Sevyn’s hand started to peel, which initially was and is still a little scary. It looks so painful, and she cries a lot when we redress it. We were worried about infection, but the doctor ruled it out. The raw skin that we see is a good sign. We still have to be very careful and watch for infection. Her doctor wants her hand to breathe and stay dry - so that means less splint and wrap.
We are still praying for a miracle, and that blood will flow through her fingertips. We still have hope and faith, even if our faith is the size of a mustard seed some days.